Resources & Partners
NephCure Kidney International
NephCure Kidney International’s mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome, and to provide education and support that will improve the lives of those affected by these protein-spilling kidney diseases.
Kidney Research Network
KRN engages patients, medical teams, researchers, regulatory experts, industry, patient advocates, and other partners to accelerate research in the rare diseases associated with nephrotic syndrome.
Conect4Children
c4c (conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire pediatric population.
Pediatric Nephrology Research Consortium
The PNRC is an organization that continues the same mission of the MWPNC, which is to improve the care of pediatric patients with kidney disease and hypertension and facilitate collaborative research in the field of pediatric nephrology.